So, We are back in NC, Garran had a good trip to VA. Uneventful medically. As usual rain followed me, so it rained the first day we were home. But the rest of the weekend was good.
Today he went to Pulmo Rehab, and I have to say it had to be the most productive he has had thus far. His brother and sister had to come becuase the school wasnt ready to admit them yet, so they cant start til tomorrow.
But because they were there, Garran did 5 minutes on the tread mill, rode the tricycle around the hospital for about 10 minutes, and stayed above 90 % sats, and then played on the Wii for the remainder of the time. He did fantastic. By the end tho he was real tired, and his sats were barely getting above 90 on 3 litres, but he was really trying.
The pharmacy up in VA started carrying the 7% saline which is very cool, so we were able to get a 3 month supply before we left, I am glad for that. It makes things easier. Mixing it to make the 7% isnt hard, just time consuming.
We decided to start fundraising with COTA. So soon we will have a website set up with them. I will still have this site. But there will be a separate site just for fundraising purposes, and for anyone that wants to volunteer to help fundraise, and help on the events.
Anyway, Thats about it for now, nothing else new to report.
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1 comment:
Nice update.
Especially nice that you're home, but quite understand how nice not having to make up the saline is too.
Keeping you in my heart,
LisaV
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